Rick Sain: Pancreatic Cancer Action NetworkRick Sain: Red de Acción Contra el Cáncer de Páncreas (Pancreatic Cancer Action Network)
By: Keith
There are times that blog posts are written with longevity in mind, not the effect of an instant reaction. This is one of those posts. A family friend, Rick Sain, died last week after a brief one month fight with pancreatic cancer. I didn’t know him very well; I remember him vaguely from years ago. He was a good friend of my dad’s and he recently commented several times on this website. His name is important in that it puts a face to a worthy cause for anybody who happens to search his name and finds themselves here reading this article. It’s a funny thing about the internet – it can be used by trolls who lack English skills and common courtesy. It can also sometimes do good things. Over time, this post will gain strength and start ranking on Rick’s name. That will give me the opportunity to send them to the Pancreatic Cancer Action Network. The sole purpose of this post is to memorialize Rick Sain by linking his name with an organization that does good in the world. I took all of 20 minutes to do this for Rick. I’m not pretending it’s earth shattering, but isn’t something better than nothing? A lot of somethings add up.
Pancreatic Cancer Facts (as copied from the Pancreatic Cancer Research and Education Act, H.R 745):
An estimated 42,470 Americans will be diagnosed with pancreatic cancer in 2009, and over 35,240 will die from the disease.
The incidence among African-Americans is 40 to 50 percent higher than other ethnic groups.
Pancreatic cancer is one of the few cancers for which survival has not improved substantially over the past 30 years. As a result, in 2003, pancreatic cancer surpassed prostate cancer as the 4th leading cause of cancer-related death in the United States.
Seventy-five percent of pancreatic cancer patients die within the first 12 months of the diagnosis. The 5-year survival rate is 5 percent.
Scientific understanding of pancreatic cancer–its etiology, pathogenesis, detection, and treatment–lags far behind that of most other forms of cancer. In fact, pancreatic cancer research is where breast cancer research was in the 1930s–little understanding of the causes, no early detection, few effective treatments, and single-digit survival rates.
In 2001, the National Cancer Institute developed `Pancreatic Cancer: An Agenda for Action’. Seven years later, only five of the report’s 39 recommendations have been implemented because of a lack of funding, focus, and commitment. In the meantime, pancreatic cancer death rates have continued to increase.
Pancreatic cancer research constitutes less than 2 percent of the National Cancer Institute’s Federal research funding, a figure far too low given the severity of the disease, its mortality rate, and how little is known about how to arrest the disease.
Of the more than 5,000 research grants awarded by the Nations Cancer Institute in 2006, only 134 (3 percent) were categorized by the Institute as at least 50 percent relevant to pancreatic cancer research.
The future supply of scientists entering this field of study is in serious jeopardy. There are currently fewer than 58 principal investigators who have multiple grants or a primary career focus on pancreatic cancer. Further, in the last 3 years, the National Cancer Institute has awarded only 5 grants for training and supporting young principal investigators in pancreatic cancer.
Hay veces en las que los artículos en un blog son escritos con la idea de longevidad, no por el efecto de una reacción instantanea. Este es uno de esos artículos. Un amigo de mi familia, Rick Sain, falleció la semana pasada después de la breve lucha de un mes contra el cáncer de páncreas. Yo no le conocía muy bien; le recuerdo vagamente de hace varios años. Pero el era un muy buen amigo de mi papá y hasta recientemente había estado haciendo comentarios en este sitio web. Su nombre es importante porque le da un rostro a una causa justa para cualquiera que se encuentre buscando su nombre en el Internet y se encuentre leyendo este artículo. Algo cómico del Internet es que es usado por gnomos sin la habilidad de hablar inglés y sin cortesía común. Pero también puede ser usado para hacer cosas buenas. Con el tiempo, este artículo va a ganar fuerza y empezará a ganar una buena posición en el nombre de Rick. Eso me va a dar la oportunidad de enviar a mis lectores a la Red de Acción Contra el Cáncer de Páncreas (Pancreatic Cancer Action Network). El único propósito de este artículo es conmemorar a Rick Sain al enlazar su nombre con una organización que hace bien en el mundo. Solo me tomó 20 minutos el hacer esto por Rick. No estoy pretendiendo que es algo muy conmovedor, pero ¿qué no el hacer algo es mejor que no hacer nada? Un montón de pequeñas cosas se sumarán a ser algo grande.
Hechos sobre el cáncer de páncreas (copiado directamente del Acta de Estudios del Cáncer de Páncreas H.R. 745):
Se estima que unos 42,470 americanos serán diagnosticados con el cáncer de páncreas en el 2009, y más de 35,240 morirán por causa de esta enfermedad.
Esta enfermedad se presenta entre los afro-americanos de un 40 a 50 por ciento más que en cualquier otro grupo étnico.
El cáncer de páncreas es uno de los pocos cánceres de los cuales el nivel de supervivencia no ha mejorado en los últimos 30 años. Como resultado, en el 2003, el cáncer de páncreas sobrepasó al cáncer de próstata en el 4º lugar como causante de muerte relativa a un cáncer en los Estados Unidos.
El setenta y cinco por ciento de los pacientes de cáncer de páncreas muere dentro de los primeros 12 meses después de haber sido diagnosticados. La tarifa de supervivencia después de 5 años es de un 5 por ciento.
La comprensión científica del cáncer de páncreas – su etiología, patogénesis, detección, y tratamiento – se encuentra mucho más retrasada que la de la mayoría de los otros cánceres conocidos. De hecho, las investigaciones del cáncer de páncreas se encuentra ahora al mismo nivel que el cáncer de pecho se encontraba en 1930 – muy poco conocimiento de sus causas, no detección temprana, pocos tratamientos efectivos y los números de los índices de supervivencia en números de un solo dígito.
En el 2001, el Instituto Nacional del Cáncer desarrolló ‘El cáncer de páncreas: una agenda para tomar acción’. Siete años después, solamente cinco de las 39 recomendaciones en el reporte han sido implementadas debido a la faltad de fondos económicos, enfoque y compromiso. Mientras tanto, el número de muertes debidas al cáncer de páncreas sigue aumentando.
Las investigaciones del cáncer de páncreas constituyen menos del 2 por ciento de los fondos federales del Instituto Nacional del Cáncer, una cantidad demasiado pequeña considerando la gravedad de la enfermedad, su nivel de mortalidad, y qué tan poco se sabe sobre como contrarrestar dicha enfermedad.
De más de las 5,000 becas para investigaciones otorgadas por el Instituto Nacional del Cáncer en el 2006, solamente 134 (un 3 por ciento) tuvieron un 50 por ciento de relevancia con la investigación del cáncer de páncreas de acurdo con el Instituto.
La fuente de futuros científicos entrando en este campo de estudio está seriamente en peligro. De momento existen menos de 58 investigadores principales quienes tienen diversas becas o una carrera cuyo enfoque principal es el cáncer de páncreas. Encima de eso, en los últimos 3 años, el Instituto Nacional del Cáncer ha otorgado solamente 5 becas para el entrenamiento y apoyo de jóvenes investigadores principales del cáncer de páncreas.



Pancreatic cancer is a scary thing. It can go unnoticed and take those in our lives far too quickly. Here’s hoping that your something leads to a lot more that all add up.
.-= PJ Mullen´s last blog ..The monster at the end of this post =-.
My uncle was diagnosed 3 years ago and is one of the lucky few thus far. Cancer is bad enough without barely having a fighting chance. Sad.
Mom: I didn’t know that. I guess there’s a lot I don’t know. Sad :-/
That is sad that Rick went from diagnosis to passing away in only one month. Life is so precious and fragile.
Thank you so much for doing this! My husband was diagnosed in October of 2009. He is 45. We have 3 daughters who love their Daddy very much! We are both teachers. Our family went from one of worrying about daily errands and just looking forward to a weekend to get caught up on things to a family cherishing every day we have and basing our schedule around the next doctor visit. This can happen to anyone and it is a devastating disease with very grim statistics. We pray every day that Joe will be one of the “lucky”, but the future is so uncertain.
We so appreciate you bringing attention to this worthy cause. We are hopeful that efforts like yours will make awareness grow…hopefully, leading to a cure!
Many Blessings!
Rebecca: It’ll take some time, but eventually this post will gain strength and be seen by more people. Your family is clearly going through some tough times. The future is uncertain; please stay strong and know that there are people in the world who care.
Thank you very much for posting this! My mom died after a 145 day battle with pancreatic cancer. I appreciate your taking the time to write this post and bring awareness to this terrible disease.
Michelle: You’re welcome. I didn’t know much about pancreatic cancer before I started reading up on it yesterday. I had no idea how quickly it could take someone. I’m sorry about your mother.
My Mom died at 61 of pancreatic cancer, diagnosed in May of 2008 and died in December of 2008. It was the most horrible thing to watch a love one go through and I pray there is a cure someday for this.There were warning signs earlier than diagnosis. She had been complaining since summer of 2007 regarding stomach problems, in and out of doctors, they even took out her gall bladder thinking it was that. Finally after numerous trips to doctors office and emergency rooms, they finally found it. Stage 4, too late. There needs to be much more research and awareness brought to this cancer, had there been my Mom may have had more time, may have been a candidate for surgery. Sadly it was found to late and could not operate.
Jill: May to December just isn’t much time to fight, is it? It’s long enough to see and experience the pain, but it isn’t long enough to start winning the fight. I’m sorry to hear another sad story about this cancer. The fact that doctors couldn’t figure it out is the kicker. I guess that means that even doctors are undereducated about pancreatic cancer. What a shame.
As an active volunteer for this organization, thank you for this post! I lost my dad 3 years ago to this horrendous disease, and do not wish this experience on anyone, not even my worst enemy.
I’m sorry for your family’s loss, and to all the other posters, your losses as well. With your support we WILL beat this thing – it just takes time, money and volunteers – please see if you can find a local affiliate to join up – we need all the voices we can get!! Even if it’s just taking a minute to talk to your local senators and congressmen, it makes a difference.
MWood: You’re welcome. And thank You for volunteering. You’re right — one voice, then another an another. Eventually it adds up.